About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.


Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

BBC Lifeline Appeal for CHECT

This short programme, presented by Shane Richie, gives an insight into the journeys of some of our families affected by retinoblastoma, the work that we do and why supporting CHECT is incredibly important.

Celebrating Champion Dads

We feel it’s important to recognise those amazing dads out there who go above and beyond to support their families. Here’s just a few of our hero dads!

Life After Childhood Cancer

Being diagnosed with retinoblastoma back in 1950, Greg Ovens recalls his life experiences including fond memories of his ‘days out’ at Moorfields Eye Hospital with his father

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